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Thoughts. Hope. Encouragement.


Freedom!
X-rays, discussions with the genetics team regarding NF1, and a visit to fracture clinic resulting in his casts coming off! Yay!
Jun 17, 20211 min read


Sticks & Bones
We had our appointment with the bone doctor, endocrinology, on Wednesday, so I thought it was a good idea to give you a further update...
Jun 4, 20211 min read


So many appointments
Another month has passed since Henry's last blood tests! Hard to believe how fast time is passing by lately...
May 24, 20211 min read
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